6th Annual Sickle Cell Patient & Family Symposium: Full Schedule

8:30am CDT

Getting on Target!

Our focus this year is understanding sickle cell, increasing our self-care and finding our voice! This first session will use art and crafts to help us create a notebook to track all that we will learn this week.

Presenters

Vanessa Rhodes, M.Ed

Director of Outreach and Communication, HOPE for SCD

Vanessa is a mother of a warrior, advocator, and an educator. She is a self proclaimed lover of the educational process as evidenced by the variety of positions she has held over the past 31 years. She served as a teacher, curriculum writer, principal, Educational Administrator... Read More →

Thursday July 25, 2019 8:30am - 9:00am CDT
Blue Stem 1

K: Children's Track, Self-Care

11:00am CDT

Broken Crayons Still Color

Broken Crayons Still Color- Self Advocacy & Mental Health AwarenessAdvocacy of any kind is challenging. Not only are a number of skills necessary to advocate effectively, but you must also believe that your voice is valued. By practicing self-advocacy with the support of parents and trusted adults, teens can gain confidence in using this important life skill and parents get to see teens take a first step toward living an independent, successful life.

Presenters

Duchess Joyce El

Founder/CEO, Journeys by Grace Global Missions, Inc

Self Advocacy Training/WorkshopsMedical Humanitarian Missions (worldwide)Yellow Rose Mentoring Group (girls)Expressive Art Therapy (Film, Crafts, and Writing)

Friday July 26, 2019 11:00am - 1:00pm CDT
Blue Stem 1

K: Children's Track, Self-Care

8:30am CDT

Natural Approaches to Pain Management

How can you combat pain either without or in conjunction with pain medications? How can your self-care choices help you to reduce the frequency of your pain? This hands on session will explore two terrific options- the use of relaxation and diet. Participants will make a takeaway stress ball and sample foods that increase blood production.

Presenters

Lisa Rose

Instructional Designer, HOPE for SCD

Lisa Rose is the Executive Director for HOPE for SCD, an organization focused solely on providing research based medical education around Sickle Cell Disease and areas of complimentary interest. She has a Master's Degree in Education and has been developing curricula and trainings... Read More →

Vanessa Rhodes, M.Ed

Director of Outreach and Communication, HOPE for SCD

Saturday July 27, 2019 8:30am - 10:15am CDT
Blue Stem 1

K: Children's Track, Self-Care

12:30pm CDT

Creative Movement

Join us for a fun afternoon dance class for kids! Learn how to focus your attention away from the pain and explore the benefits of this terrific therapeutic opportunity.

Presenters

Kristina Ward

Saturday July 27, 2019 12:30pm - 1:30pm CDT
Blue Stem 1

K: Children's Track, Self-Care

1:30pm CDT

STEM Corner - Technology Workshop & Lab

Join us for a fun afternoon coding and robotics class for kids! Learn how to focus your attention away from the pain and explore the benefits of this terrific therapeutic opportunity.

Presenters

Corey Ward

Saturday July 27, 2019 1:30pm - 3:30pm CDT
Prairie A

K: Children's Track, Self-Care