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C: Caregiver [clear filter]
Friday, July 26
 

8:30am

Parent to Parent Panel
Presenters
avatar for Lisa Rose

Lisa Rose

Instructional Designer, HOPE for SCD
Lisa Rose is the Executive Director for HOPE for SCD, an organization focused solely on providing research based medical education around Sickle Cell Disease and areas of complimentary interest. She has a Master's Degree in Education and has been developing curricula and trainings... Read More →


Friday July 26, 2019 8:30am - 9:30am
Prairie C

8:30am

Warrior Parents- A panel on loving as a warrior and raising well adjusted children
Join us as we here from sickle cell warriors that are ALSO parents. They will share their personal testimonies as well as field questions from the audience around this ever-growing topic among our community. 

Presenters
avatar for Clayton Andrews, LAPC

Clayton Andrews, LAPC

President, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 36-year-old patient with Sickle Cell Disease, residing in Augusta GA. An advocate, mentor and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →
avatar for Shamonica Wiggins

Shamonica Wiggins

Shamonica Wiggins is a 30-year-old sickle cell warrior and a native of Dallas, TX. Although she has sickle cell SS, which is commonly referred to as the most critical form of the illness, she rarely allows it to get in the way of her chasing her dreams. This is evident in the work... Read More →


Friday July 26, 2019 8:30am - 9:30am
Prairie B

6:00pm

Kids Night Out
Kids up to age 15 can come out for a fun filled time of dinner, games, crafts and a movie. Registration required. See Lisa Rose or email lrose@hopeforscd.org to register. $10/child, $30/per family cap. Includes dinner, snack and goodie bag. 

Friday July 26, 2019 6:00pm - 10:00pm
Prairie B
 
Saturday, July 27
 

9:00am

Caring for the Caregiver: Dealing with Burnout & Guilt
Limited Capacity seats available

Presenters
avatar for Carley Elle Cole Cavins

Carley Elle Cole Cavins

Owner, Cleverly Changing
Residing in PG County Maryland with her husband and twin daughters. Elle Cole left her corporate job to become a stay-at-home mom when her daughters were only 4 months old. She holds a B.A. degree in English and History. She is a writer and content creator who is a go-to resource... Read More →


Saturday July 27, 2019 9:00am - 10:00am
Prairie C

11:00am

504/IEP Accomodations
Sickle cell automatically qualifies for a 504 plan and sometimes you can even get accommodations through an IEP. Come join us for elementary, secondary, and higher education accommodations that can help you be successful during your educational journey.

Presenters
avatar for Tynisha Hall

Tynisha Hall

Tynisha Hall 30 years old born and raised in Birmingham, Alabama and resides in Atlanta, Ga. Tynisha is a graduate and proud alumnus of Delaware State University with a Bachelors degree in Broadcast Journalism. She serves as the communications/community outreach director... Read More →


Saturday July 27, 2019 11:00am - 11:30am
Prairie C